Treatment for all. The choice is clear.

Many with psoriasis make difficult choices between managing their disease and other priorities. That's why we are handing you the megaphone to tell the world the choices you've had to make to get treatment. Your stories will be shared with Congress to gain support for the Patients' Access to Treatments Act (PATA), a bill aimed at lowering treatment costs.

National Psoriasis Foundation gratefully acknowledges the following companies for their support.

Abbvie Amgen Pfizer Celgene Janssen Novartis Eli Lilly

Any information collected from this site is the exclusive property of the National Psoriasis Foundation and will not be shared with corporate sponsors.

I have to choose between treatment and

a chance at getting pregnant.

Katie

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1 2 2

Without treatment

I was embarrassed and humiliated. Now I'm able to learn more about psoriasis, talk to people about it and live a happy life.

Sabrina

Before treatment

going out in public was too much to bear.

Roma

Getting care

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2 4 4

Without treatment

I would probably be erythrodermic and crippled.

Matt

Without treatment

I have kids ask what is wrong with my arms and legs. The itching and burning is constant. Joint pain and stiffness increases.

Michelle

Without treatment

psoriasis is severe and itches a lot very embarrasing

Theresa S

Without treatment

for my psoriatic arthritis, it would be difficult for me to walk, write, drive, and exercise.

Tracy

Before treatment

I was having a miserable life for the last fifteen years. Now i am 100% fit and enjoying my routine life.

MK

Claim denied?

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3 4 4

Before treatment

I could not walk, be touched or work without being in pain so bad that it took my breath away.

Jenny

Without treatment

Lack of sleep is not a choice but without my treatments I get little to no sleep. Treatments can be hard but well worth it!

Josh

Without treatment

Psoriasis is not good looking pain for all body...

Bolat

Financial assistance

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4 2 2

Without treatment

my plaques would be so painful that it was hard to move around, sometimes bringing me to tears.

AubreyPgh

Without treatment

my case was Terrible, till i found methotrexate, it cleared my skin, then i started topical coricosteroids to contol it

Dr.shady

Without treatment

I would have been debilitated. Why does one single dose of biologic cost over $5K?

Angie

I have to choose between treatment and

I was using phototherapy with good results but the costs were astronomical. I knew the costs were high, but I wanted to st

ick out the treatment regimen to see if it would work. It did. Much to my disappointment, I had to halt treatments so I co

Dave P.

Without treatment

my quality of life is pretty low. My arms and tops of hands are painful and look scalded

Jacquelyn

Costly copays

Copay too expensive?
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5 2 2

I have to choose between treatment and

i have to choose between treatment and other bills please help.

richard

Before treatment

I was searching for an answer as to what was wrong with my skin. The diagnosis of psoriasis was only the beginning.

Judy

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1 4 4

Without treatment

My skin is itchy, dry, flakey, bleeds, and depresses me.

A. Bridges

Without treatment

I chose to go without treatment and to use pure and safe products as i firmly believe the initial disruption to my immune sys

tem

beverley sankey

Without treatment

not a candidate for biologics, we need some financial assistance with products we use daily ,food or skin care.

sandy tree

I have to choose between treatment and

Had psoriasis arthrts and 95% skin lesion. Doctors help manage very well for me. Just few spots on head now. Feeling great.

Raghav

Without treatment

Functioning day to day becomes a challenge.

Jeff

Getting care

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2 4 4

I have to choose between treatment and

other medication due to health issues. Most people treat you with disrespect once they see what your body looks like

Eva

Claim denied?

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3 5 5

I have to choose between treatment and

taking Vitamin D3 which clears up my psoriasis within a year without taking any strong drugs.

Lorraine Bernard

Before treatment

as a teen I slid down the stairs in the morning on my buttocks, b/c my feet hurt so bad from psoriatic arthritis inflammation

Allison V.

Before treatment

Ps covered 80% of my body and I was teased/wore long sleeves all the time. PUVA saved me and now I only manage a few plaques

Crys

Before treatment

I was in severe pain and tired all the time. I needed to be able to work and this was very difficult!

Jenn

Financial assistance

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4 4 4

I have to choose between treatment and

other health issues because the biologics interfer with the medications

Robin

Costly copays

Copay too expensive?
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5 5 5

I have to choose between treatment and

living expenses. I cannot use the same medications for different parts of my body that flares up.

Jenelle Allen

Before treatment

I almost died of complications from plaque psoriasis when I developed erythroderma.

Diana

I have to choose between treatment and

Running my house i cant afford both Docs ones so far have been unsuccessful now is really flaring up

Donna kinnear

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Enrollment ends March 31.
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1 3 3

Without treatment

Without my meds, I am not able to function and take care of my family. We need to have affordable meds to keep us moving.

Maria

Getting care

Frustrated with treatment roadblocks?
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2 4 4

Before treatment

The suffering and pain of my psoriasis and psoriatic arthritis made every day unbearable I could not stand it.

illina

Claim denied?

Steps you can take
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3 5 5

I have to choose between treatment and

enjoying life. Worst thing about my plaques is when visiting my grandkids, the kids follow me around with a vacuum clean.

Grumpa Bob

Before treatment

I was covered with psoriasis and my fingers hurt too much to use.

Larry

I have to choose between treatment and

Paying my living expenses.

Paula

Financial assistance

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4 3 3

Without treatment

Before Humira I was full of lesians, in pain and achy from psoriatic arthritis and exhausted all the time. Bravo Humira.

L. Frank

Without treatment

I feel lost. Without health insurance I have little to no hope my condition will ever improve.

Derrick

I have to choose between treatment and

paying my other bills. I am on Stelara which has given me my life back and the co-pays are extreme. Janice B

Janice B

Without treatment

I would not be able to survive. The pain and itching - even with treatment - can be unbearable.

Larry Z

Costly copays

Copay too expensive?
Get assistance »

5 2 2

I have to choose between treatment and

supporting my family, period. I use only the cheapest treatments because I do no have private insurance to try new ones.

WendaLynn

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Enrollment ends March 31.
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1 3 3

I have to choose between treatment and

paying my bills. In order to live, I must pay my bills. So they come first, treatment comes second for me.

Jamie P.

Without treatment

A mothers agony to watch her child suffer

sharon

Without treatment

Psoriasis is a chronic life long auto immune disease. Without insurance means without Biological Drugs!

Jenn

I have to choose between treatment and

keeping my kids on my insurance! my deductible went up to $3000 and my Humira was $2900 for 2 shots...i did not have $2900 s

o had to drop my kids off insurance to get my deductible down to $1500..still high, but I needed my medicine and really was a

shawn

Getting care

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2 2 2

I have to choose between treatment and

food. The other bills have to be paid. Psoriasis is not a new disease. Why has science not come up with a cure?

Mike

Before treatment

Struggled we/ finding a treatment that would work and spent time embarrassed by my condition although costly enbrel saved me

Amandaprekup

I have to choose between treatment and

I have to choose between having a lowered immune system or be covered from head to toe 90% with guttate psoriasis.

Susan Conolly

Without treatment

I did every imaginable potion possible..plus the biologic drugs...had to go off them...now fighting it with a vengence...I am

grammajj

I have to choose between treatment and

i HAVE HIT THE DO NUT HOLE AND GOING TO HAVE TO HAVE 3252.00 FOR 15 PILLS IIS IS FOR ACIATRETIN THE ONLY MEDS THAT HAS HELPED

Dody Hook

Claim denied?

Steps you can take
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3 2 2

Before treatment

I could not have knee surgery. I had total knee replacement this summer, but the doctor would NOT cut until it was gone.

janet

Financial assistance

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4 3 3

Without treatment

my daughter would be miserable, her skin would crack and bleed, the itching would be awful.

DLB

I have to choose between treatment and

Even the doctors seems to have no sufficient knowledge. I suspect I have psoriasis after joining U. I am living in a shadow

Dereje A

Costly copays

Copay too expensive?
Get assistance »

5 5 5

I have to choose between treatment and

The very high cost of prescriptions. My pharmacist says Derm drugs are always very high cost.

Richard

I have to choose between treatment and

paying bills, as of right now I do not receive treatment, my family and I can not afford insurance or treatment.

Khay

Without treatment

I would have places on my knees that would split open. Itch all over, so bad you just want to claw yourself til you bled.

Melanie Sewell

I have to choose between treatment and

no treatment

steven gardner

Before treatment

My skin was cracked and bleeding and itchy, and my joints were so swollen I could barely walk.

Meredith

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1 5 5

Without treatment

Without treatment more than 90% of my body is painfully covered with psoriasis.Psoriatic arthritis nearly disables me.

Viviane M.

I have to choose between treatment and

having money for other things in life, since my health insurance only gave me $1,500/yr prescription coverage.

AMR

Before treatment

My hands and feet cracked and bled, I was unable to sleep or concentrate due to constant pain and itching. It was unbearable

Christine

Without treatment

I can not afford treatment due to the cost of it. I have bad months usually during winter where it gets bad on scalp elbows k

nees and usually every else.. I have lost half my hair before and it grew back. just wish there was a affordable way to make

Jess

Without treatment

I had spots every where on me including my face. I got this Swiss cream named Coresatin and after 4 days my face was clear.

Taous

Getting care

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2 5 5

Without treatment

I struggle just to walk and move around my house. With 4 kids and a husband that is not the life I want to live!

Cathy

Before treatment

After my dad took a turn for the worse in December of 2011, I started with patches on my scalp, they got so bad. I made an

appointment with a derm. and they could not diagnosis me. I was there 3 times. Finally I switched to another derm.

Jo Jo

Without treatment

I would not be able to walk. though still have a long way to go before improvement, I am thankful for treatment options.

Summer Scirocco

Without treatment

my son Andy and I would be spending our days in wheelchairs. We would wake up nightly in pain and feel tired all day.

Jaime M.

Claim denied?

Steps you can take
Appeal it »

3 4 4

Without treatment

I can barely move most days. I am in tremendous pain and have become very depressed.

Design

Financial assistance

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4 5 5

Without treatment

I constantly ache, itch and pick at the huge scales...

LivingWithPsoriasis

Without treatment

I cannot wear black, shorts, short sleeves, or confidence without my spots showing.

Liz W.

Without treatment

I cannot live my life to the fullest. Treatment helps me have the confidence I have today, to smile an to bring light to oth

ers

Jenna

Without treatment

It looked like it was snowing when I combed my hair.

Metalmama

Without treatment

I watch my bf struggle with Psoriasis everyday and how quickly it is spreading after he returned from his tour in Iraq.

Yelena

Costly copays

Copay too expensive?
Get assistance »

5 5 5

I have to choose between treatment and

and eating properly along with taking other meds

Kris Cieslik

Before treatment

I was in so much pain, I had to wear gloves to avoid infection and could barely walk

Mary

Without treatment

I limp and bleed on the bottom of my feet. It is hard to walk and act normal. My doctors tell me to walk more! Go figure!

Rosiefoot

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1 3 3

I have to choose between treatment and

cancer

Karen

Without treatment

it was awful,I avoided to wear short trousers, embarrassing when friends ask what is that red spot in your skin!

Ahmed

Before treatment

I was a working nurse for 26 years taking care of others,a job I loved. Now disabled with PSa,I fear the future.

Susan Scott

Before treatment

Pain and disability was inevitable. Affordable, accessible treatment options give me better health and hope.-

Susan

Getting care

Frustrated with treatment roadblocks?
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2 2 2

I have to choose between treatment and

Paying other bills. I have a $5000 copayment on my HSA so it takes a lot of light treatments before my insurance pays a cent

Alicia Catherine

Claim denied?

Steps you can take
Appeal it »

3 3 3

Without treatment

I would be immobile as I have psoriatic arthritis. The flare up was intense and painful...Thank you Remicade!!!!

Cindy

Without treatment

it is hard to move around. left to worry about it - so I pray your psoriasis goes away. cast all your cares upon the Lord

R

Financial assistance

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4 5 5

Without treatment

I have had to wrap my feet in plastic wrap to try to relieve the split skin, the itching, and the pain.

cat

Before treatment

I was scrambling to gain control of my health. I avoided going out in public. I was frustrated and depressed.

Todd

Without treatment

My bones & joints would deteriorate. Not to mention the unbearable pain that would come- its bad enough with treatment.

Deanna

Before treatment

I have learned to be "invisible" and hide. It was also humiliating to apply for Disability but it helped.

Dee

Costly copays

Copay too expensive?
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5 4 4

Without treatment

Patches started taking over my body. The worst areas were hands and feet and the itching...With treatment...RELIEF!

Karen

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1 5 5

Without treatment

We should be have hope to find the way. we can, we can & we can.

hamid

Before treatment

everyone stared like I was a "disease". skin is clearing thanks to an IV infusion every 8 wks but now I deal with PsA :o(

Jackie

Without treatment

I have seen my psoriasis go from bad to worse. I can do nothing but watch as it spreads to more and more areas.

Vickie

Getting care

Frustrated with treatment roadblocks?
Get help »

2 3 3

I have to choose between treatment and

I watch my niece weather the storm of her horrible psoriasis and it breaks my heart! She is such a trooper ....sad!

JoAnne

I have to choose between treatment and

food, bills, etc. The only topical med that manages the painfully dry, red, and itchy outbreaks costs $275 for a 60g tube.

Donna

Claim denied?

Steps you can take
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3 5 5

I have to choose between treatment and

having $$ to properly take care of my children. I cannot afford the copay for my biologic and have been deteriorating fast.

Unfortunately, there are no funds avail in any of the grants. Please, please lower these costs!!!

Roni

Before treatment

The plaques were taking over my body...I scratched my skin and scalp so much that I was always bleeding.

Jeanne

Before treatment

I could not even keep a steady job, and I was shunned by co workers.

chris

Financial assistance

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4 3 3

Before treatment

I was in so much pain, it destroyed my marriage because I was more worried about my pain than my marriage.

Jenn

I have to choose between treatment and

$700 for a tube of ointment and $700 for a bottle of spray that last 30 days, is Crazy!!!

Cathy

Costly copays

Copay too expensive?
Get assistance »

5 5 5

Before treatment

My hands were covered with bandaids, every finger was cracked, and bleeding, it was quite painful..

jim

Before treatment

I am currently taking Humara the copay for the treatment is baerable but, I still have problems controlling the psoriasis. I

have had the deases for about 10 years.

Rebecca Ambrisco

Without treatment

at 25 years old I am loosing all of my hair and am in constant aggravating itchy pain everyday.

Shayna

Looking for insurance?

Enrollment ends March 31.
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1 3 3

I have to choose between treatment and

comfort. I was diagnosed in 7th grade and am currently 19. UVB treatment works but dries my skin out and my ointments stain.

Joseph

Getting care

Frustrated with treatment roadblocks?
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2 4 4

Before treatment

i was a shut in but now i go out with my friends and i am no longer a shame of my hair or my body

cynthia

Claim denied?

Steps you can take
Appeal it »

3 5 5

Without treatment

I watch the patches grow and grow. The itching wakes me up at night, sometimes with blood on my nails.

Chris

I have to choose between treatment and

freedom. I find treatment to be imprisoning, between expensive trial meds, scheduling dr. apts, and smelling like chemicals

Brie

Without treatment

I lived in pain and the disease significantly altered my life. With biologics treatment which i am tremendously thankful to

have access to, I lead the full life I want to and deserve to have with tremendous relief from my disease.

Leslie H Age 48

Financial assistance

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4 3 3

Without treatment

I had to hide behind long sleeves and explain my skin as a rash.... I am on Humira now thankfully.

Elisa Forman

Without treatment

My eyelids bleed when I blink.

Noah

Costly copays

Copay too expensive?
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5 5 5

Without treatment

Lots of healthy green food and surfing (sun) keeps me about 90% clear. I consider myself very fortunate.

Scott

Without treatment

I am not productive. I have been unemployed for two years, because my psoriasis is holding me back.

Callie

Without treatment

I 44 years old and without treatment I am ashamed of my body.

Mayra

Looking for insurance?

Enrollment ends March 31.
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1 3 3

Without treatment

There is no treatment even with Insurance the co-pays on biologic meds are so high its eat and mortgage or medicine

Kenneth Wagner

Without treatment

I have tried all biologics, Enbrel, Raptiva, & Humira along with mexatrate. Just to make me depressed & my mind foggy.

Rose

Getting care

Frustrated with treatment roadblocks?
Get help »

2 5 5

Without treatment

I do natural remedies by detoxing. I do my 4 week cleansing diet regimen. No extra cost and it clears my psoriasis.

evangeline tiu lu

Without treatment

This outburst is so severe I am experiencing joint pain that make it difficult for me walking or standing for long period

Lorraine

Claim denied?

Steps you can take
Appeal it »

3 2 2

Without treatment

I am not able to walk, go out, do my chores, live my life the way I want to because of my psoriasis and psoriatic arthritis.

Ninfa

I have to choose between treatment and

I am suffering with Psoriasis for last 12 years and as treatment having Methotraxate. While having Methotraxate, it was back

again and again. Then I started to have black cumin with tea and raw black cumin 1 spoon every day. Believe, the tendency of

Roman

Before treatment

pain controlled my life. i could not be the mom i want to be to my daughter- playful, active and present.

Allison

Financial assistance

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4 5 5

Without treatment

I would not be a member of an amazing nursing team that takes care of sick children. I would not able to work .

Terri

Without treatment

my hands and my feet were horrible looking! the pain endless,severe plaque psoriasis on my hands and feet was agony.

Wanda

Costly copays

Copay too expensive?
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5 2 2

Before treatment

I have had life long severe widespread psoriasis, nothing worked. I started taken vitamin D3 and within 2 months it is clear

Shadow

I have to choose between treatment and

Being able to pay my bills. The only thing working for me is Stelara and soon I will not be able to afford it.

Janice

Without treatment

I have no hope that I will go into remission.

Brandon Kee

I have to choose between treatment and

I live with psoriasis (34 years) because no one has proven that any drug works without giving another problem to live with.

Leslie

Without treatment

life was a hopeless spiral into pain and isolation. With treatment, I have hope.

Pat

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1 2 2

Before treatment

I used so much steroid ointmemt my skin started bruising & skin tears. Im 48. WTF!

gina

I have to choose between treatment and

no medical treatment. Lidex cream cleared up my skin rashes with plenty of sunshine. Psoriasis under my finger nails better.

David Collins

Getting care

Frustrated with treatment roadblocks?
Get help »

2 4 4

Without treatment

I had no treatment as a little girl in school with it all over my body and got made fun of.

Cheyenne

Without treatment

plz help me my english is not vary well i am ill i need treatment

Adil

Before treatment

I was in pain and my lesions were worse than ever. My life is back, no more pain each day! Treatment works if available!

Krissy

I have to choose between treatment and

Eating right. After all drugs over years no help I followed Dr. Pagano regime within 3 months PPP gone.

Turbo girl

Before treatment

my son had psoriasis over 80% of his body at age 3. but after many treatments over the years, now at age 11, he is mostly c

lear with only occasional flareups. Thank goodness for biologics, creams and UV lamp.

Theresa

Claim denied?

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3 4 4

Without treatment

i dont think i will ever be able to go back to living a life where i always have to cover up.

Annamarie

Without treatment

Sometimes things are fine but when it get cold my elbows, ears and sometimes my hands are affected. With treatment mostly ok

except the ears :)

Jo-Ann

Before treatment

I became a recluse after my first flare which covered my limbs while I was in college. 8 years later ENBREL keeps me clear.

marshall

Financial assistance

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4 2 2

Without treatment

I would itch, be tired, and have painful and deformed joints.

Ben

Without treatment

having a lot pain and flares without treatment

Blanca

I have to choose between treatment and

I had 3 months of treatment in 2009 with $ help from friends. It worked great. But sadly I cannot afford it on my own

Daisy

Costly copays

Copay too expensive?
Get assistance »

5 5 5

Without treatment

My psoriasis covers my entire body. But between a combination of phototherapy and steroids, I can keep it under control.

Katie

Without treatment

The pain from psoriatic nails, skin, and arthritis keep me from being the productive person I want to be.

Mindi

Without treatment

my mother could not have a good quality of life. Having treatment controls the disease and helps her cope

Tiara Pennington

Looking for insurance?

Enrollment ends March 31.
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1 3 3

Without treatment

I was a shut-in, now I own a car and went on my first date in 10 yrs. Thank you for changing my life.

Laney

Without treatment

I have had 6 surgeries in 5 1/2 years. I have finally been diagnosed with psoriatic arthritis. I pray the meds help!

Laura J. Lubeck

Before treatment

My joints were gradually being deformed & I had psoriasis scales over a large part of my body. Also ulcerative colitis.

Sonny C.

Without treatment

I cannot practice as a doctor; I am dependent upon others due to the pain and weakness in my joints.

Danielle Currey, ND

I have to choose between treatment and

going every year to the Dead Sea. This natural treatment keeps me clear for almost a year. Sorry for all the big industries..

Pieter

Getting care

Frustrated with treatment roadblocks?
Get help »

2 3 3

Before treatment

The risk of not treating is just as great of risk of treating

Amanda

Before treatment

I lived in humiliation and pain. Now, at 70, i feel like I have just started to live.

Carol

I have to choose between treatment and

Taking Vitamin D3- 5,000 mgs daily-cleared Palmer psoriasis in weeks. No Recurrence. Maintaining daily D3 intake.

Eileen

I have to choose between treatment and

My retirement. The co-pay amounts are extremely high...several hundred dollars a month...Help!

Dave...Age 70.

I have to choose between treatment and

having enough money for groceries. The medicine is so overpriced.

Kristina Martin

Claim denied?

Steps you can take
Appeal it »

3 3 3

Without treatment

it became harder to walk and work due to the pain in my legs, feet, and hands. Without the treatment I would be disabled. The

meds keeps me a step a head of disability.

Ben

Without treatment

I watched my father die with this terrible disease. I also watch my siblings struggle with this condition. Please help.

Bill

Financial assistance

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4 5 5

Without treatment

the soles of my feet would have continued to be open and bleeding, not allowing me to walk or work.

Rose

Without treatment

I would not be able to enjoy my grandgurls and work.

Julie

I have to choose between treatment and

a college education for my daughter.

sd

Costly copays

Copay too expensive?
Get assistance »

5 3 3

Without treatment

I would not be able to walk or go to work. Psoriatic arthritis medications have cleared my skin and given me back my life.

Lisa

Looking for insurance?

Enrollment ends March 31.
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1 4 4

I have to choose between treatment and

college funding for my 2 girls.

mb

Getting care

Frustrated with treatment roadblocks?
Get help »

2 5 5

I have to choose between treatment and

The treatment is too costly to afford.Many times have to compromise with the medicines of other members of the family

V.R.Ramesan

I have to choose between treatment and

And paying my other bills.The cost of doctor visits and blood work even with insurance there is to much due.

david dow

Without treatment

My psoriatic arthritis is so bad that some mornings I have difficulty just moving my blankets so I can get out of bed.

Jody Q.

Before treatment

I have had psoriasis for 25 years, since I was 5 years old. Thanks to advances in treat my psoriasis is much more controlled.

Michelle

Before treatment

Pain, itching, bleeding, baths at 3 am just so I could sleep. Embarrassment flaking everywhere I go. No peace.

Tiffany

Claim denied?

Steps you can take
Appeal it »

3 5 5

Before treatment

Sad, depressed, angry, overweight and poor health. I use Stelara now & am sad to see others suffer, but it is expensive!

Janet B

Without treatment

I will ultimately have plaques and bloody scabs all over my body. There is no hope, no treatment that can help me.

Mary

Financial assistance

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4 2 2

I have to choose between treatment and

paying the bills.

Catherine George Kaiser

Before treatment

My son had to walk around the house on his knees because the cracks on his feet made it too painful to walk

Jason

Without treatment

I was diagnosed when I was 30, but had psoriasis for years that my doctors told me was "just a rash". Without treatment it sp

read until I went to a specialist. Had it been treated earlier I would have been much better off.

Jim Ed

Without treatment

I felt as if I would suffer from psoriasis forever. Finding a treatment that works has been hard, but I am still hopeful.

Alisha

Without treatment

I get depressed, discouraged, and frustrated at the pain I am enduring.

Sylvia F

Costly copays

Copay too expensive?
Get assistance »

5 2 2

Without treatment

Nothing is working on my condition of Psoraisis, still un married and waiting for miracle.

Jawad Akhtar

I have to choose between treatment and

Paying basic bills. lost my job, lost insurance. Pustular psoriasis on hands for 40 plus years.. You say no stress??

Rhonda

Looking for insurance?

Enrollment ends March 31.
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1 4 4

Without treatment

as a 25yr old woman with arthritis & plaques, pain, fear of rejection & the stares become overwhelming.

Erica Anne

Without treatment

I could hardly walk and my hands were always very painful because of my hand/feet pustular psoriasis and psoriatic arthritis.

Chris

Without treatment

the plaques piles up like cement all over, I use evenly plus ointment and moisturizer to manage it, flare ups horrible.

sandy tree

I have to choose between treatment and

my childrens education and bills. Dovobert a topical cream costs me an arm and a leg

Sybil